Kalendarium ‘Right to Live 2025’
- History of the ‘Right to Live’ Solidarity Kalendario
- What is amyotrophic lateral sclerosis?
- The Spanish Amyotrophic Lateral Sclerosis Association (adELA)
Karmen Garrido, journalist from Madrid and president of the Spanish Federation of Tourism Journalists and Writers, has presented her Kalendario ‘Right to Live 2025‘ at the Theatre of the Lycée Français in Madrid.
This is the fourth anniversary of the Solidarity Kalendario founded, produced and directed by Karmen Garrido who donates it to the Amyotrophic Lateral Sclerosis Association and whose objectives are:
- To raise funds to improve the quality of life of people affected by ALS and their environment.
- To raise awareness of Amyotrophic Lateral Sclerosis, a disease for which there is currently no cure.
- To make society aware of the need for support and help for sufferers and their families.
People affected by ALS and their families have the right to live
RIGHT TO LIVE... AND TO LIVE IN THE BEST POSSIBLE CONDITIONS.
History of the ‘Right to Live’ Solidarity Kalendario
The pandemic changed many things. Everyday life became harder and more distressing for everyone, and for people with ALS and their families even more so.
With no possibility of organising events to raise funds to support care and essential services for those suffering from the disease, Karmen Garrido came up with the idea of founding a calendar in which relevant personalities she had met throughout her career would pose with people affected by ALS to donate it to the Amyotrophic Lateral Sclerosis Association (ADELA), with which she has been collaborating for years, carrying out different actions.
Karmen Garrido: ‘My first paper child, launched in 2022, was a dream at the time. A dream that has been fulfilled and that makes the sick, their families and, consequently, me very happy. This fourth edition, which I presented at the Lycée Français Theatre in Madrid, with which I have a very special relationship, was very moving. Thanks to the management for their generosity. My gratitude to those who supported me and believed in my Kalendario from the very beginning’.
What is amyotrophic lateral sclerosis?
ALS is an incurable neurodegenerative disease from which no one is free. It causes the gradual loss of mobility until the patient becomes highly dependent, the progressive deterioration of the ability to feed, swallow, communicate normally and breathe.
It is the most costly neurodegenerative disease for families.
The most urgent thing to do:
IMPROVING THE QUALITY OF LIFE OF THE PATIENT AND THEIR ENVIRONMENT.
What is essential:
TO DEVOTE MORE INVESTMENT TO RESEARCH AND CARE FOR PEOPLE AFFECTED BY ELA AND THEIR ENVIRONMENT, AND TO EXTEND INSTITUTIONAL SUPPORT.
IMPLEMENT THE RECENTLY PASSED ELA LAW AND PROVIDE IT WITH FUNDING.
Founder and director of the ‘Right to Live’ Kalendario for adELA:
KARMEN GARRIDO - Journalist and Writer.
PHOTOGRAPHY: VARIOUS PHOTOGRAPHERS
DESIGN: LAURA GONZÁLEZ
PRINTING: NEW GRAPHIC FORMS
AND THE AMIGOSSOL (the AMIGOSSOLIDARY FRIENDS)
‘My fourth paper child’ - For the creation of her fourth Kalendario “RIGHT TO LIVE 2025”, Karmen Garrido has contacted again, as she did for the previous ones, with relevant people from various sectors of society, to ask them to pose selflessly with people affected by ALS. 'Putting the contacts I have made over the years in my profession at the service of people who suffer from such a terrible disease and founding this kalendario, my fourth paper child, is for me,’ explains Garrido, ’an emotion that is impossible to explain'.
The Spanish Amyotrophic Lateral Sclerosis Association (adELA)
A non-profit organisation founded in 1990, statewide, dedicated to helping people with ALS and other motor neuron diseases to improve their quality of life. It was declared of Public Utility in 1995 by the Council of Ministers; in the year 2000, H. M. Queen Sofía granted it the title of Honorary President, ratifying the Association's constancy and commitment to society, having passed this position to Queen Letizia. It was awarded the Seal of Recognition of the Fundación del Cerebro (FEEN) as a guarantee of Excellence and, in February 2016, it obtained the Fundación Lealtad Seal, which accredits that the Association complies with the 9 Principles of Transparency and Good Practices.
And we have experienced INTENSE AND UNFORGETTABLE MOMENTS.
Emotion on the surface.
The delegate of Social Policies, Family and Equality, Mr. José Fernández Sánchez, Ms. Consuelo Alfaro Moreno, General Director of Social Services and Disability Care, the medical team of the Zendal Hospital, patients and their families and many friends who wanted to join us, we have shared this enriching experience with people suffering from this devastating disease and their families. Isabel Pérez Dobarro, Rubén Torres Melero and my colleague Antonio Muelas also accompanied us despite their hectic schedules. Thank you all for your generosity (Karmen Garrido).
KALENDARIO RIGHT TO LIVE 2025
JANUARY
ANTONIO AGUILAR WITH ÁGATHA RUIZ DE LA PRADA
FEBRUARY
JOSÉ ISAAC LOSADA VIÑAS WITH PALOMA BARRIENTOS
MARCH
MARTA GOIZUETA ARIAS-DÁVILA WITH AMANCIO RADA
APRIL
ANA MARÍA BARBERO ZURITA WITH ENRIQUE CEREZO
MAY
LUIS JAVIER RIVERA VICENTE WITH ADRIANA TANUS AND LAIA CALONGE GARCÍA
JUNE
MARCOS ÁLVAREZ LÓPEZ WITH Mª ANTONIA ESCAPA
JULY
INMACULADA SAYAGO FUENTENEGRO WITH FATHER LUIS LEZAMA
AUGUST
ESTER SOUSA CAMBRONERO WITH JAVIER GUTIÉRREZ
SEPTEMBER
FRANCISCO PÉREZ DURÁN WITH MARÍA BLASCO
OCTOBER
Mª BELÉN HERNÁNDEZ DURÁN WITH ANTONIO MUELAS
NOVEMBER
ELOY ÁVILA GARCÍA - CARMEN LÓPEZ TORRES WITH UNIDAD ELA LA PAZ - CARLOS III
DECEMBER
ELSA AND MARIO IBÁÑEZ GÓMEZ WITH ISABEL PÉREZ DOBARRO AND RUBEN TORRES MELERO
Memory to memory.
My uncle, AURELIO GARCÍA GONZÁLEZ, was born in Beberino (León). He was always a brave man. He did not hesitate to go to work in Australia with his wife and three little girls. He was looking to improve his future. And there his fourth daughter was born. Brave as he said... He built a bright future for his family and everything was going well until ALS crossed his path. He returned to Spain in search of a cure, a cure that does not exist today. He returned to Australia where he died at the age of 48. But, like all those who have left us, he takes care of us (Karmen Garrido García).
LOS AMIGOSSOL (the SOLIDARY FRIENDS)
LICEO FRANCÉS DE MADRID - NACEX - ESTADIO 10 - PLAY4 LIFE ATALAYAR - WELCOME - RADIO ENLACE - VIAJAN D. O. - EL CIERRE DIGITAL - MADRID DIARIO - APEI - L'ENTRAIDE - CASTILLO TRANS
THANK YOU ALL FOR YOUR
GENEROSITY AND SELFLESS HELP
GIVE YOURSELF AND GIVE A YEAR WITH HOPE BUY YOUR KALENDAR 2025 at www.adelaweb.com
CONTRIBUTION:
10 euros Kalendario wall
6 euros Kalendario table
We send them to your home.
